Rare Disease Symposium 2024 罕病研討會
Living Connected, Brightens Living with the Rare 罕建網絡,罕建未來
Date and time
Location
Nina Hotel Tsuen Wan West
8 Yeung Uk Road Hong Kong, NT Hong KongRefund Policy
About this event
Organized by
Since 2016, Rare Disease Hong Kont(RDHK)organises a large-scale conference annually to discuss and make recommendations on different rare disease topics. This year, the Rare Disease Symposium 2024 is co-organised by RDHK, HKU Li Ka Shing Faculty of Medicine(HKUMed), The University of Hong Kong-Shenzhen Hospital(HKU-SZH), Peking Union Medical College Hospital(PUMCH) and China Alliance for Rare Diseases(CHARD) with the theme "Living Connected, Brightens Living with the Rare". We have invited a total of 26 medical experts from Hong Kong, Mainland China and overseas to discuss rare disease policies, the latest research and treatment developments; and 15 representatives of rare disease patient organisations from Mainland China and Hong Kong to share their experiences.
自2016年起,香港罕見疾病聯盟(罕盟)每年都舉辦大型研討會,就不同罕病議題作深入探討和提出建議。今年,罕盟很榮幸能與香港大學李嘉誠醫學院、香港大學深圳醫院、北京協和醫院及中國罕見病聯盟一同合辦「罕病研討會 2024」,主題為「罕建網絡,罕建未來」。我們共邀得26位來自香港、國內及海外的醫學專家,講解罕見病政策、科研及治療的最新發展;以及15位本地及內地罕病病友組織代表分享經驗。